来源：丁香医生

对于我们来说或许平平无奇，但对于罕见病患者来说，

他们只有在一年当中的今天，才能被看见、被注意、被了解。

即使全球已经有 3.5 亿的罕见病患者，而我国也有 2000 万之众。

罕见病患者很容易被忽视，他们不仅要遭受病痛的折磨，

还要面对治疗难、用药贵，无法融入社会等问题。

我们可以做些什么？

不用异样的眼神「观看」，有需要时伸一把手，

甚至，只是从了解开始，就是最大的善意。

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